Caring for someone with endometriosis

Find information for both practical and emotional support

Introduction

Caring for a loved one with endometriosis can be a journey filled with compassion, understanding, and sometimes challenges. It’s not just about managing the physical symptoms; it’s also about being there for your friend or family member emotionally.

This page provides you with practical tips and advice on how to support someone living with endometriosis. Your role is crucial, and your support can make a significant difference in someone’s experience with endometriosis.

Being powerless

Caring for someone with endometriosis can often leave caregivers feeling powerless as they witness the challenges and pain that the condition brings. It’s important to recognise that while you can’t fix everything, your presence and understanding are invaluable.

Communication

Listen to the needs and experiences of the person with endometriosis. Understand that their symptoms can fluctuate, and their needs may change accordingly. Talking openly helps you to understand their condition and provide the support they need when they need it most.

Advocate

Being an advocate involves more than just emotional support. It can mean helping to navigate healthcare systems, attending appointments, and advocating for their needs with medical professionals. It’s about being an active participant in their journey towards managing endometriosis.

Useful resources

If someone close to you is struggling with painful symptoms, worrying about work, or concerned about their fertility, it can leave you feeling overwhelmed and unsure which way to turn.

Here are some resources to help you find your way:

 

Find support

Information, emotional support, and connection for those on a similar journey.