Diagnosis

Covering the pros and cons of getting an endometriosis diagnosis.

Introduction

Many think that once they get a diagnosis, they have the answer, and that’s the end of the road. But often, people don’t realise that that’s just the start of the journey.

Being hit with the idea that there is no cure for this condition and then realising it’s now up to you to manage your symptoms can cause your mental health to plummet.

Being mentally prepared can help. Read this page for more information.

The importance of getting a diagnosis

Getting an endometriosis diagnosis should have a positive impact on managing your symptoms. An accurate diagnosis can help you understand the extent of the condition so that a tailored treatment plan can be made.

Diagnosis also provides a clearer understanding of what to expect and how to best manage your life with endometriosis. You will finally have a reason for your pain and/or other symptoms, which will help you get the support you need at work, with your relationships and your overall mental health.

It’s a positive thing, when approached with the proper support. You can get support from our online community Facebook Group or our local face-to-face support groups. You can find details of these on our charity Facebook page.

The downside to diagnosis

Receiving an endometriosis diagnosis can bring more questions than answers. Everyone here at Endo SOS understands how isolating this can feel. Especially when it seems like your pain and/or other symptoms are being dismissed or reduced to a single word. It’s not just about having a name for what you’re experiencing; it’s about wondering how this will impact every aspect of your life, from your fertility to your ability to work and your ongoing mental health.

We want you to know that you’re not alone on this journey. We’re here to provide the support you need from before your diagnosis to beyond. Think of us like that comforting cup of tea during the harsh realities. Offering a space to find understanding, empathy, and genuine support. For both the physical symptoms and the emotional challenges ahead.

How is a diagnosis made?

Diagnosing endometriosis can be challenging, primarily due to its symptoms often resembling other conditions. Typically, the process involves:

  • Laparoscopy This is the most definitive way to diagnose endometriosis. It involves a surgeon making small incisions in the abdomen to look for endometrial tissue outside the uterus.
  • Biopsy During a laparoscopy, a biopsy (tissue sample) may be taken for further examination.
  • Ultrasound Often used to check for cysts associated with endometriosis. However, it’s important to note that ultrasound cannot definitively diagnose endometriosis.
  • Physical examination* This may include a pelvic exam to check for abnormalities or cysts.
  • Medical history and symptoms review A healthcare provider will discuss your symptoms, menstrual cycle, and any pain you experience during periods, intercourse, bowel movements, or urination.

Ultimately, early diagnosis can help you manage symptoms more effectively and improve your quality of life. However, it’s important to realise that diagnosis isn’t the be-all and end-all. Understanding this can help avoid future mental health problems.

Of course, we’re here for you every step of this journey. Follow our charity Facebook page for local support group updates and our Facebook Group for online community support.

Notes

*Certain individuals, especially those dealing with anxiety or who have faced trauma such as physical abuse, might find such examinations challenging. If you feel uneasy, anxious, or upset before, during, or after an examination, please inform your healthcare providers. If verbal communication is difficult, you can express your emotions in writing.

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